EXACTLY the same!
We will soon be awarded support from the National Institutes of Health for a clinical trial of interventions to benefit children with CM whose brains have massively increased in size.; Having identified the problem, we will now be able to evaluate different treatment options. It is thrilling. And, as luck would have it, Madonna is building a pediatric ICU at our hospital, right across the driveway from our MRI. The timing is PERFECT! I am currently fundraising for nurses' salaries (we need to staff the ICU): $20,000 per year, per nurse --- and the trial runs for six years AND for the hardware and software for an electronic medical record system. We are working with a high quality local group, the Baobab Health Trust (http://baobabhealth.org), and they estimate that the hardware and software development will cost $100,000.
Absolutely. I am astounded at the "reach" --- it has brought word of our work to far more people than I would have ever dreamed possible.
Be sure to always check the batteries in the "remotes".